Could this be NPC?
Use this symptom checklist to help understand whether what you’re seeing could be signs of NPC.
This checklist is meant to help you understand possible symptoms and should not replace guidance from a healthcare provider. It should be used for children experiencing neurological symptoms before 6 years of age.
Which neurological signs have you noticed?
Select any symptoms that your child is experiencing now or has experienced in the past.1,2
Have you noticed any of these early signs?
Some children with NPC experience these signs after birth. Select any that your child has now or has experienced in the past.1
Is there a known family history of NPC in a biological relative?
Confirm if anyone in your family has been diagnosed with NPC.
RESULTS
It may be time to start a conversation.
Based on the signs and symptoms you selected, consider talking with your child's healthcare provider about genetic testing.
NEXT STEPS
Be prepared for the conversation
Use this guide to help prepare for a conversation with your child's healthcare provider about genetic testing.
Find experienced care
A healthcare provider experienced in treating NPC can help guide next steps, answer questions, and support your child’s care.
This checklist is meant to help you understand possible symptoms and should not replace guidance from a healthcare provider. It should be used for children experiencing neurological symptoms before 6 years of age.
NEXT STEPS
Be prepared for the conversation
Use this guide to help prepare for a conversation with your child's healthcare provider about genetic testing.
Find experienced care
A healthcare provider experienced in treating NPC can help guide next steps, answer questions, and support your child’s care.
RESULTS
If you still have concerns, don’t stop asking questions.
The information you shared doesn’t necessarily point to NPC based on this checklist alone. But you still know your child best. If you’re concerned about your child’s symptoms or how they’re changing over time, continue the conversation with your child’s healthcare provider or an NPC specialist.
NEXT STEPS
Find experienced care
A healthcare provider experienced in treating NPC can help guide next steps, answer questions, and support your child’s care.
Be prepared for the conversation
Use this guide to help prepare for a conversation with your child's healthcare provider about genetic testing.
This checklist is meant to help you understand possible symptoms and should not replace guidance from a healthcare provider. It should be used for children experiencing neurological symptoms before 6 years of age.
NEXT STEPS
Find experienced care
A healthcare provider experienced in treating NPC can help guide next steps, answer questions, and support your child’s care.
Be prepared for the conversation
Use this guide to help prepare for a conversation with your child's healthcare provider about genetic testing.
RESULTS
It may be time to start a conversation.
Based on the signs and symptoms you selected, consider talking with your child’s healthcare provider about genetic testing.
NEXT STEPS
Be prepared for the conversation
Use this guide to help prepare a conversation with your child’s healthcare provider about genetic testing.
Access conversation starter
Find experienced care
A healthcare provider experienced in treating NPC can help guide next steps, answer questions, and support your child’s care.
Find a specialist
This checklist is meant to help you understand possible symptoms and should not replace guidance from a healthcare provider. It should be used for children experiencing neurological symptoms before 6 years of age.
©2026 Beren Therapeutics P.B.C. All rights reserved. Beren and Mandos are trademarks of Beren Therapeutics P.B.C. DSA-1620-US-EN-v1 07/2026
RESULTS
If you still have concerns, don’t stop asking questions.
The information you shared doesn’t necessarily point to NPC based on this checklist alone. But you still know your child best. If you’re concerned about your child’s symptoms or how they’re changing over time, continue the conversation with your child’s healthcare provider or an NPC specialist.
NEXT STEPS
Find experienced care
A healthcare provider experienced in treating NPC can help guide next steps, answer questions, and support your child’s care.
Find a specialist
Be prepared for the conversation
Use this guide to help prepare for conversations with your child’s healthcare provider about genetic testing.
Access conversation starter
This checklist is meant to help you understand possible symptoms and should not replace guidance from a healthcare provider. It should be used for children experiencing neurological symptoms before 6 years of age.
©2026 Beren Therapeutics P.B.C. All rights reserved. Beren and Mandos are trademarks of Beren Therapeutics P.B.C. DSA-1620-US-EN-v1 07/2026
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